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Register a new userA Review of Privacy and Consent Management in Healthcare: A Focus on Emerging Data Sources
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Added by
Muhammad Rizwan Asghar
Publication date
2017
fields
Informatics Engineering
and research's language is
English
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The emergence of New Data Sources (NDS) in healthcare is revolutionising traditional electronic health records in terms of data availability, storage, and access. Increasingly, clinicians are using NDS to build a virtual holistic image of a patients health condition. This research is focused on a review and analysis of the current legislation and privacy rules available for healthcare professionals. NDS in this project refers to and includes patient-generated health data, consumer device data, wearable health and fitness data, and data from social media. This project reviewed legal and regulatory requirements for New Zealand, Australia, the European Union, and the United States to establish the ground reality of existing mechanisms in place concerning the use of NDS. The outcome of our research is to recommend changes and enhancements required to better prepare for the tsunami of NDS and applications in the currently evolving data-driven healthcare area and precision or personalised health initiatives such as Precision Driven Health (PDH) in New Zealand.
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The Internet of Medical Things (IoMT) are increasing the accuracy, reliability, and the production capability of electronic devices by playing a very important part in the industry of healthcare. The available medical resources and services related to healthcare are working to get an interconnection with each other by the digital healthcare system by the contribution of the researchers. Sensors, wearable devices, medical devices, and clinical devices are all connected to form an ecosystem of the Internet of Medical Things. The different applications of healthcare are enabled by the Internet of Medical Things to reduce the healthcare costs, to attend the medical responses on time and it also helps in increasing the quality of the medical treatment. The healthcare industry is transformed by the Internet of Medical Things as it delivers targeted and personalized medical care and it also seamlessly enables the communication of medical data. Devices used in the medical field and their application are connected to the system of healthcare of Information technology with the help of the digital world.
Robots are becoming an important way to deliver health care, and personality is vital to understanding their effectiveness. Despite this, there is a lack of a systematic overarching understanding of personality in health care human robot interaction (H-HRI). To address this, the authors conducted a review that identified 18 studies on personality in H-HRI. This paper presents the results of that systematic literature review. Insights are derived from this review regarding the methodologies, outcomes, and samples utilized. The authors of this review discuss findings across this literature while identifying several gaps worthy of attention. Overall, this paper is an important starting point in understanding personality in H-HRI.
Systems incorporating biometric technologies have become ubiquitous in personal, commercial, and governmental identity management applications. Both cooperative (e.g. access control) and non-cooperative (e.g. surveillance and forensics) systems have benefited from biometrics. Such systems rely on the uniqueness of certain biological or behavioural characteristics of human beings, which enable for individuals to be reliably recognised using automated algorithms. Recently, however, there has been a wave of public and academic concerns regarding the existence of systemic bias in automated decision systems (including biometrics). Most prominently, face recognition algorithms have often been labelled as racist or biased by the media, non-governmental organisations, and researchers alike. The main contributions of this article are: (1) an overview of the topic of algorithmic bias in the context of biometrics, (2) a comprehensive survey of the existing literature on biometric bias estimation and mitigation, (3) a discussion of the pertinent technical and social matters, and (4) an outline of the remaining challenges and future work items, both from technological and social points of view.
In recent years, the amount of information collected about human beings has increased dramatically. This development has been partially driven by individuals posting and storing data about themselves and friends using online social networks or collecting their data for self-tracking purposes (quantified-self movement). Across the sciences, researchers conduct studies collecting data with an unprecedented resolution and scale. Using computational power combined with mathematical models, such rich datasets can be mined to infer underlying patterns, thereby providing insights into human nature. Much of the data collected is sensitive. It is private in the sense that most individuals would feel uncomfortable sharing their collected personal data publicly. For this reason, the need for solutions to ensure the privacy of the individuals generating data has grown alongside the data collection efforts. Out of all the massive data collection efforts, this paper focuses on efforts directly instrumenting human behavior, and notes that -- in many cases -- the privacy of participants is not sufficiently addressed. For example, study purposes are often not explicit, informed consent is ill-defined, and security and sharing protocols are only partially disclosed. This paper provides a survey of the work related to addressing privacy issues in research studies that collect detailed sensor data on human behavior. Reflections on the key problems and recommendations for future work are included. We hope the overview of the privacy-related practices in massive data collection studies can be used as a frame of reference for practitioners in the field. Although focused on data collection in an academic context, we believe that many of the challenges and solutions we identify are also relevant and useful for other domains where massive data collection takes place, including businesses and governments.
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